Tight muscles

A new struggle By September, the first onslaught of symptoms had become part of my everyday life and lost their magic. I started to take the recovery and improved health for granted, and progressively forgot how it felt when my condition was excruciating, although it was still quite terrible. There was a new problem. In August I was so absorbed on the victory and the intensity of the recovery (ya know, it's the holy grail), that I thought I would recover in 2 months at most, hopefully before the Fall semester started. However, I reached the end of September and I was nowhere near the end. The recovery was indeed systematic, but it was taking so long and I was still dealing with wide nerve irritability, body stiffness, fatigue among other things (all decreasing progressively, but so slow!). I got progressively surprised that so many things I always assumed were normal were actually screwed and would take long to repair. Initially overconfident, the persistence of the syndrome humble...

Victory There was something going on with these contractions that made use of these weird muscular involuntary movements. The PT was ending and I thought it was worth it to keep trying at my room in hopes of making it more systematic instead of a random fluke, even if it was against what my therapist suggested. You know how this thing is, there is no hope against this condition, and having hope and then inevitably failing can crash you further, but I persisted (perhaps irrationally) anyway. I resumed the experiments without telling my mom. I tried many things, all involving some kind of muscle spasmic motions or special positioning of the joints. Some involved strengthening with the bands I got from PT, also walking or cycling trying to let my joints be more free-moving or spasmic, for example trying to walk with the hip wobbled (rotated) to a side, which was really hard. Also tying a belt around my thorax to try to stabilize it (it broke lol). All of this was mostly useless, but there...

Desperate for a way out I was going to fly to the US soon and be all on my own without my family to help me with the condition. So, in the last 1 or 2 months I did a last round of checks with doctors and also did last attempts towards dealing with this problem, because if not I'd fly in a really bad state. Those were very crazy months in which I obsessed with trying techniques, desperately looking for something to work. My first attempts involved mewing and in general variations of tongue positioning. In some tongue positions, leaving it there for some time, I could get some very cool jaw and tongue release effects which felt very fresh and alleviated my TMJ sometimes, but it was temporary. Eventually I couldn’t get those releases anymore and the TMJ persisted just as badly, so I stopped. The next attempts involved the usual PT, as in stretches and soft strengthening with bands, also icing joints and using a tennis ball for massage. I would try to massage and do stretches for as ...

(Before anything, I'm sharing a Drive where I upload my weekly progress in fighting my disease: link ) Welp, it's my first post and I'm a very bad story teller, not a very good combination as you can already see ;) To whoever stumbles on this, welcome to my blog. My name is Oscar and as the description says, I'm a sufferer of Neuropathy and Hypermobility, Chronic fatigue and pain, suggested Fibromyalgia, and all that nasty package that is well known by others who also won the genetic anti-lottery like me. I'm not an american, but I came to the US in January 2021 to study a physics PhD specialized in string theory. By now I'm a second year PhD student, so as a "string theorist" I'm very novice, and a very bad one!  A brief introduction to those who don’t know about this syndrome. The typical story in us sufferers is that we live our first years pretty much like any normal person, except for some minor pains and odd symptoms that over years appear in...